the Service of helping people with amyotrophic lateral sclerosis raises funds for equipment for non-invasive ventilation was reported in the non-profit organization.
“Patients with amyotrophic lateral sclerosis from St. Petersburg and Leningrad region to get the device NIVL, you must pass an examination and medical examination. Thus in present hospitalization are often postponed: the majority of hospitals accept only or primarily patients with coronavirus infection. But for people with als, the disease is fatal,” — said in the service.
If a person with als is not promptly provided to the device NIVL, sooner or later he will start to suffocate, you will have to call an ambulance. In the hospital it will be connected already to another lung — invasive.
“to Shoot a man with amyotrophic lateral sclerosis with artificial ventilation is usually impossible. He is completely bedridden, cannot swallow, and speak normally. Not everyone wants to live”, — says the head of the Service by people with als in St. Petersburg the Faith of Lemeshonok.
the Organization helps its clients to NIVL or provides the device itself. The equipment is returned to service after use. But the devices themselves require regular maintenance and consumables — circuits, masks and filters — often have to re-buy. Today, the organization is forced to raise 60 000 for the purchase of three sets of consumables for devices NIVL. This will ensure a reserve of ready-to-use of technical means for respiratory support of patients in the later stages. Most families who seek help in service at this stage, financial resources are very limited, and the equipment needed urgently — the bill often goes on the clock. The fundraising announced on the platform Benefit.ru.
Recall service to assist people with als appeared in PetersRga in 2016. She now works as an independent project on the basis of Saint-Petersburg Association of public associations of parents of children with disabilities “GAOORDI”, has a license for the provision of palliative care and annually leads to an average of 100-120 patients in the North-West of Russia.
“Rosbalt” presents the project “All inclusive!”, designed to show that disability is a problem that concerns each of us. And moral state of society is determined by how it relates to people with developmental disabilities.
Stories about how you tried to get help from the Russian state in terms of coronaries and what came of it, email it to COVID-19@rosbalt.ru
